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Improving detection and management of FH

Improving detection and management of FH

Publication date: Wednesday, 10 October 2018

Public Health England (PHE) have published an implementation guide following the recent update of the NICE guideline (CG71) on familial hypercholesterolaemia (FH). This guide is aimed at commissioners and service providers and includes a summary of recommendations from the NICE Guideline, an outline of national and European policy documents and best practice case studies.


Despite significant progress in the fight against cardiovascular disease more than 85% of people with FH are unaware that they have the condition and that they are at risk of premature heart disease. In addition, access to FH services across the country at present is patchy, with only around a third of the population in England covered by services offering diagnosis and management of FH. There is no standard service delivery model and approaches differ based on local circumstances. Case studies included in the new guide as appendices illustrate these different approaches.

This implementation guide aims to provide practical support to organisations, helping them to identify the gaps in the provision of FH services in their local area, and helping them address these gaps in line with the recently updated NICE guidance.

The resource is written collaboratively by PHE, NICE, NHS England, HEARTUK and the British Heart Foundation, to highlight that improving care for those with FH will need a co-ordinated effort and a whole-system approach.

The new PHE implementation guide on FH:

  • Highlights and explain the new recommendations included in the updated NICE guideline
  • Outlines key messages for professionals and the public
  • Outlines relevant national and European policy documents
  • Supports local commissioners to make the case for developing FH services
  • Supports primary care to deliver the guidelines and local areas to organise and plan their services
  • Shares best practice through service development examples and case studies
  • Provides information on, and links to, other key documents to support commissioners


More information

Familial hypercholesterolaemia: Implementing a systems approach to detection and management. Public Health England 2018. PHE publications gateway number: 2018307 https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/731873/familial_hypercholesterolaemia_implementation_guide.pdf



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Category: Have You Heard
Edition: Volume 3, Number 10, BJPCN Online 2018

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